This wellbeing check-in is a short, honest look at the parts of your health and daily life that are within your control.

Living with Pompe disease often means having a complex medical history — a list of specialists, enzyme replacement therapy schedules, respiratory equipment needs, and a group of symptoms that emergency providers may have never encountered. In an unplanned medical...

Living with Pompe disease means juggling multiple specialists, frequent monitoring, and symptoms that can change subtly over time. Whether you’re newly diagnosed or many years into your journey, tracking your symptoms consistently can make your appointments more...

Nutrition supports energy, muscle health, and ERT in Pompe disease. Discover practical tips to make a Pompe-friendly diet easier to follow.

Whether you’re boarding a flight, taking the train, or catching a bus across town, this guide offers practical tips and resources to help you travel safely, comfortably, and with greater peace of mind.

This article offers guidance on how to find accessible accommodations and tourist activities in Canada and abroad.

Most individuals impacted by Pompe disease understand the importance of exercise. Here are tangible tips to help you stay motivated.

Grief is deeply personal and challenging. In this article, we offer practical advice for individuals grieving a loss due to Pompe disease.

When your child has Pompe disease, it’s crucial that their teachers understand the condition and how it affects your child’s daily life. In a recent conversation with Alexandra, a teacher with Pompe disease, she offered some strategies to help you explain Pompe disease effectively to teachers.

Staying informed about Pompe disease can be a great way to take control, build confidence, and communicate effectively with your care team.