Resources
These documents are available in two formats. The first is bi-fold or folded brochure. These are printed on letter-size paper but then folded once, creating a four-sided booklet. This is a great format if you want to print them and give them to someone. The second is portrait or standard page, which is good if they are kept on your device or printed and put into a binder.
Industry Resources
When we say ‘industry’, we are referring to the pharmaceutical industry. These companies are often very good resources for information about rare disorders like Pompe disease.
English
PDF downloads
- Understanding Pediatric Clinical Trials (Amicus Therapeutics)
- A Visual Guide to Understanding Pompe disease (Amicus Therapeutics)
- Pompe Guide Digestive Tract Signs and Symptoms (Amicus Therapeutics)
- Muscle is Muscle (Amicus Therapeutics)
- Mental Wellness (Amicus Therapeutics)
- Pompe Patient Brochure (Sanofi)
- Pompe Patient Siblings Discussion Guide (Sanofi)
Video
Français
Téléchargements PDF
- Un guide visuel pour comprendre la maladie de pompe (Amicus Therapeutics)
- La maladie de Pompe oriente les signes et symptômes du tube digestif (Amicus Therapeutics)
- Un muscle est un muscle (Amicus Therapeutics)
- Bien-être mental (Amicus Therapeutics)
- Brochure destinée aux patients atteints de la maladie de Pompe (Sanofi)
- Guide de discussion entre frères et sœurs patients de Pompe (Sanofi)