Links
Pompe Patient Groups
Other Patient and Advocacy Groups
- AGSD – The Association for Glycogen Storage Disease
- ASGD – The Association for Glycogen Storage Disease UK
- C.O.R.D – Canadian Organization for Rare Disorders
- CFA – Canadian Fabry Association
- Global Genes
- March of Dimes
- Muscular Dystrophy Canada
- NORD – National Organization for Rare Disorders
- Patients Canada
- Rare Disease Foundation
- Regroupement québécois des maladies orphelines
- Starlight Children's Foundation
- The Canadian MPS Society
- The National Gaucher Foundation of Canada
Resources
Please contact us if you have a link to add, or if you notice we have a broken link.