Rare Disease Heroes

Complex and infinitely challenging, finding diagnoses for rare diseases takes real heroes that lead the charge in this battle.

Flashmob Rare Disease Day, Amsterdam

The Dutch Rare Disease Day was celebrated in Amsterdam. A big surprise was planned for all participants. The Dutch Genzyme team, in close collaboration with the organizing committee, had organized an unannounced spectacular end to the meeting!

Extraordinary Measures – Official Trailer

Brendan Fraser plays John Crowley, a biotechnology executive whose two youngest children were afflicted with Pompe disease or acid maltase deficiency. Along with his wife Aileen (Keri Russell), he raises money for research scientist Robert Stonehill (Harrison Ford),...