The Genetic Non-Discrimination Act
Persons with genetic conditions cannot be asked by their employers, or any other agency, to disclose that information.
Rare Disease Heroes
Complex and infinitely challenging, finding diagnoses for rare diseases takes real heroes that lead the charge in this battle.
Flashmob Rare Disease Day, Amsterdam
The Dutch Rare Disease Day was celebrated in Amsterdam. A big surprise was planned for all participants. The Dutch Genzyme team, in close collaboration with the organizing committee, had organized an unannounced spectacular end to the meeting!