CAP on Orphanet
We’re pleased to announce that the Canadian Association of Pompe is now listed on Orphanet. Orphanet is the reference portal for information on rare diseases and orphan drugs, for all audiences.
Canadian Organization for Rare Disorders Welcomes Announcement of Orphan Drug Framework
TORONTO, Oct. 3, 2012 – The Canadian Organization for Rare Disorders, on behalf of the 2.8 million Canadians with rare disorders, welcomes Health Minister Aglukkaq’s announcement of the “first ever Canadian framework to increase access to new treatments and information” and the launch of Orphanet-Canada.