Rare Disease Strategy Urgently Needed to Help 3 Million Canadians

Rare Disease Strategy Urgently Needed to Help 3 Million Canadians

VANCOUVER, Jan. 19, 2016 /CNW/ – Most of the 2.8 million Canadians with a rare disease experience extraordinary and unnecessary barriers getting the right diagnosis, specialist, and treatment. On the eve of Canada’s Health Ministers’ meeting in Vancouver, the Canadian Organization for Rare Disorders (CORD) and the Economic Club of Canada convened a panel calling for the immediate implementation of Canada’s Rare Disease Strategy.

Flashmob Rare Disease Day, Amsterdam

The Dutch Rare Disease Day was celebrated in Amsterdam. A big surprise was planned for all participants. The Dutch Genzyme team, in close collaboration with the organizing committee, had organized an unannounced spectacular end to the meeting!