IPA Update – Q4 2019
The latest newsletter from the International Pompe Association.
2019 CAP Annual General Meeting
The 2019 annual general meeting for Canadian Association of Pompe will be held by conference call on Sunday, May 26, 2019.
2017 CAP Conference and AGM
The 2017 CAP Conference and AGM will be held in Toronto, Ontario, June 10-11.
2016 CAP Conference and AGM
Look out Toronto! The 2016 CAP Conference and AGM will be held in Toronto, Ontario, May 28-29.
Rare Disease Strategy Urgently Needed to Help 3 Million Canadians
VANCOUVER, Jan. 19, 2016 /CNW/ – Most of the 2.8 million Canadians with a rare disease experience extraordinary and unnecessary barriers getting the right diagnosis, specialist, and treatment. On the eve of Canada’s Health Ministers’ meeting in Vancouver, the Canadian Organization for Rare Disorders (CORD) and the Economic Club of Canada convened a panel calling for the immediate implementation of Canada’s Rare Disease Strategy.
2015 CAP Conference and AGM – Save the Date
We’re very excited to announce that the 2015 CAP Conference and AGM will be held in Montreal, Quebec, June 20-21.
2014 CAP Meeting – Save the Date! – update
We’re very excited to announce that the 2014 meeting of the Canadian Association of Pompe will be held in Fredericton, New Brunswick, June 20-23.
2013 CAP Meeting – Save the Date!
The 2013 Canadian Association of Pompe National Meeting will be held in Toronto, June 8-9.
Flashmob Rare Disease Day, Amsterdam
The Dutch Rare Disease Day was celebrated in Amsterdam. A big surprise was planned for all participants. The Dutch Genzyme team, in close collaboration with the organizing committee, had organized an unannounced spectacular end to the meeting!