2025 Pompe Empowerment Workshop : Vancouver
This Pompe Empowerment Workshop welcomes patients and their family from BC to MB, for networking, learning and sharing.
2024 Pompe Empowerment Workshop : Toronto
This Pompe Empowerment Workshop welcomes patients and their family from Ontario or the Maritimes, for networking, learning and sharing.
2023 Atelier d’Autonomisation – Maladie de Pompe : Montréal
Cet événement est présenté en français. (This event is presented in French.) L’atelier d’autonomisation de la maladie de Pompe : Montréal sera présent à l’hôtel Renaissance à Montréal le samedi 21 octobre 2023. Les séances comprennent : maladie de...
Pompe Empowerment Program (PEP) 2022
Starting Jan 16, 2022, this online series brings together Pompe disease families and other experts in five 2-hr sessions over 11 days.
2020 CAP Annual General Meeting
This year’s annual general meeting will be held on June 14, 2020, at 4pm EST.
IPA Update – Q4 2019
The latest newsletter from the International Pompe Association.
2019 CAP Annual General Meeting
The 2019 annual general meeting for Canadian Association of Pompe will be held by conference call on Sunday, May 26, 2019.
2017 CAP Conference and AGM
The 2017 CAP Conference and AGM will be held in Toronto, Ontario, June 10-11.
2016 CAP Conference and AGM
Look out Toronto! The 2016 CAP Conference and AGM will be held in Toronto, Ontario, May 28-29.
Rare Disease Strategy Urgently Needed to Help 3 Million Canadians
VANCOUVER, Jan. 19, 2016 /CNW/ – Most of the 2.8 million Canadians with a rare disease experience extraordinary and unnecessary barriers getting the right diagnosis, specialist, and treatment. On the eve of Canada’s Health Ministers’ meeting in Vancouver, the Canadian Organization for Rare Disorders (CORD) and the Economic Club of Canada convened a panel calling for the immediate implementation of Canada’s Rare Disease Strategy.