IPA Update – Q4 2019
The latest newsletter from the International Pompe Association.
Third Annual International Pompe Day
The Netherlands, (April 14, 2016) – April 15, 2016 will be the Third Annual International Pompe Day. The International Pompe Association (IPA), with the support of the global Pompe community, launched International Pompe Day in 2014. The goal of International Pompe Day is to raise global awareness of Pompe disease, a rare neuromuscular condition that affects approximately 1 in 40,000 people around the world.
International Pompe Day 2014
The IPA is excited to announce that the international Pompe community has chosen April 15, 2014 as the first annual International Pompe Day!