Ian

Ian

“We all have our challenges in life and we will all have bad days but it’s how we face those challenges that make us who we are. As I like to say, any day above ground is a good day indeed.”

Jim

Jim

“I love and cherish my two children Katelyn and Carter above all others.”

Noah

Noah

“Noah aspires to be successful but, for now, he’s considering himself to be a professional gamer. (After school) of course.”

Chase

Chase

God saw you getting tired, and a cure was not to be. So he wrapped his arms around you, and whispered “come to me”

Shauna

Shauna

“Everyone we meet has something that they are dealing with in this world. Pompe disease is mine and I will make the most of it and hopefully the clinical trial I am on will make it better for those who come after me!”