Inequities Between Provinces in Treating Rare Diseases

Inequities Between Provinces in Treating Rare Diseases

John and Kelvin Dyck may be brothers, but the two men share more than a last name. They also have in common a rare condition called Pompe disease. The genetic disorder affects only about one in 40,000 people, and causes a progressive weakening of heart and skeletal

First Pompe Patient Treated in New Brunswick

First Pompe Patient Treated in New Brunswick

After many years (yes years) of fighting to have the treatment reimbursed, Annette Sebey had her first infusion in her home province today. July 28, 2014 New Brunswick announced the New Brunswick Drugs for Rare Diseases Plan. This plan provides reimbursement for treatment of five rare diseases, including Pompe.

New Brunswick Announces Plan to Treat Patients

New Brunswick Announces Plan to Treat Patients

The provincial government has established the New Brunswick Drugs for Rare Diseases Plan which will provide assistance to those with certain rare diseases who face high drug costs. New Brunswick will partner with Ontario to deliver the plan using its Drugs for Rare Diseases Framework. The framework was established to assess drugs using the best available evidence and recommend drugs for funding based on clinical criteria.