by CAP | Mar 16, 2010 | Awareness
A New Brunswick woman with a rare genetic disease hopes the release of a new Harrison Ford movie on Friday will help draw attention to her plight.
by CAP | Jan 24, 2010 | News
Extraordinary Measures details father’s work to develop drug to fight Pompe disease Canadians living with a rare genetic disease are counting on a new Hollywood film opening today to draw attention to their debilitating and often deadly condition. Extraordinary...
by CAP | Jan 22, 2010 | News
Ian MacPherson was not expected to make it past his third decade. But now he is 29, and dreams of a future where every Canadian with Pompe disease has access to the treatment he or she needs. Pompe is a rare and often fatal genetic disease caused by an enzyme...
by CAP | Jan 22, 2010 | Awareness
A new Harrison Ford movie hits close to home for an Alberta teen Extraordinary Measures, now in theatres, tells the true story of a father’s quest to find a researcher who could develop a treatment for Pompe disease, a rare neuromuscular genetic condition afflicting...