Extraordinary Measures – Official Trailer

by | Jan 30, 2010 | Awareness

Brendan Fraser plays John Crowley, a biotechnology executive whose two youngest children were afflicted with Pompe disease or acid maltase deficiency. Along with his wife Aileen (Keri Russell), he raises money for research scientist Robert Stonehill (Harrison Ford),...

Victims of rare condition hope movie sheds light on plight

by | Jan 24, 2010 | News

Extraordinary Measures details father’s work to develop drug to fight Pompe disease Canadians living with a rare genetic disease are counting on a new Hollywood film opening today to draw attention to their debilitating and often deadly condition. Extraordinary...

Movie sheds light on treatment of rare disease

by | Jan 22, 2010 | News

Ian MacPherson was not expected to make it past his third decade. But now he is 29, and dreams of a future where every Canadian with Pompe disease has access to the treatment he or she needs. Pompe is a rare and often fatal genetic disease caused by an enzyme...

More than a movie

by | Jan 22, 2010 | Awareness

A new Harrison Ford movie hits close to home for an Alberta teen Extraordinary Measures, now in theatres, tells the true story of a father’s quest to find a researcher who could develop a treatment for Pompe disease, a rare neuromuscular genetic condition afflicting...