Allyson
“I would really love to be able to ride my horse again!”
Liam
“My parents think they can slow me down but no one can!”
John
“Set your goals high and work to achieve them; make the improbable possible!”
Portraits of Pompe
This year, for International Pompe Day, we’re launching Portraits of Pompe, an ongoing curation of stories and photos from Pompe patients and families.
Ian
“We all have our challenges in life and we will all have bad days but it’s how we face those challenges that make us who we are. As I like to say, any day above ground is a good day indeed.”
Jim
“I love and cherish my two children Katelyn and Carter above all others.”
Deklyn
“We hope for a cure.”
Guy
“I always thought I was weak and lazy…”
Noah
“Noah aspires to be successful but, for now, he’s considering himself to be a professional gamer. (After school) of course.”
Chase
God saw you getting tired, and a cure was not to be. So he wrapped his arms around you, and whispered “come to me”