Starting Jan 16, 2022, this online series brings together Pompe disease families and other experts in five 2-hr sessions over 11 days.
“I always keep trying, push myself, have a strong faith and never give up.”
“If I could travel around the world I would do it in my Oilers truck.”
“To my family and friends……. thank you for being there for me. And I am grateful for you!”
“I would really love to be able to ride my horse again!”
“My parents think they can slow me down but no one can!”
“Set your goals high and work to achieve them; make the improbable possible!”
This year, for International Pompe Day, we’re launching Portraits of Pompe, an ongoing curation of stories and photos from Pompe patients and families.
“We all have our challenges in life and we will all have bad days but it’s how we face those challenges that make us who we are. As I like to say, any day above ground is a good day indeed.”
“I love and cherish my two children Katelyn and Carter above all others.”