Rare Disease Day 2019

Rare Disease Day 2019

February 28, 2019 will be the twelfth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities.

Rare Disease Heroes

Complex and infinitely challenging, finding diagnoses for rare diseases takes real heroes that lead the charge in this battle.

Rare Disease Day 2017 from CAP

Rare Disease Day 2017 from CAP

February 28, 2017 marks the tenth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities based on the theme of research.

Rare Disease Day 2016

Rare Disease Day 2016

Rare Disease Day was first launched by EURORDIS and its Council of National Alliances in 2008. Since then it has spread with events all around the world that reach hundreds of thousands of people. Rare Disease Day always takes place on the last day of February.

Inequities Between Provinces in Treating Rare Diseases

Inequities Between Provinces in Treating Rare Diseases

John and Kelvin Dyck may be brothers, but the two men share more than a last name. They also have in common a rare condition called Pompe disease. The genetic disorder affects only about one in 40,000 people, and causes a progressive weakening of heart and skeletal