Pompe Day is wrapping up soon for another year. It’s important to point out that for Pompe families, Pompe Day is 365 days long.
“I am not just Pompe, but it is as much a part of me as my blue eyes, big feet and dark sense of humour are. I’m in a happier place for getting my diagnosis and finding my tribe at last.”
“I look forward to when precision medicine no longer sees a difference between common and rare diseases.”
Starting Jan 16, 2022, this online series brings together Pompe disease families and other experts in five 2-hr sessions over 11 days.
“I always keep trying, push myself, have a strong faith and never give up.”
“If I could travel around the world I would do it in my Oilers truck.”
“To my family and friends……. thank you for being there for me. And I am grateful for you!”
“I would really love to be able to ride my horse again!”
“My parents think they can slow me down but no one can!”
“Set your goals high and work to achieve them; make the improbable possible!”