Signs & Symptoms
Hypertrophic cardiomyopathy, which means his heart was enlarged and not working efficiently.
Deklyn is a 3 year old little boy who was diagnosed at the age of 1 month with severe infantile Pompe Disease. He’s been in and out of Alberta Children’s Hospital many times over his young life, however he has conquered and overcome many of the limitations he was expected to have. He amazes us and his doctors on a daily basis with the milestone he has hit and exceeded.
The team of health care workers we have been met and that have helped us on a daily basis have helped to keep us sane and reassure us that there is normalcy among this rare disease. Without all of the extra help and many appointments, Deklyn wouldn’t have grown into the loving and active boy he is today.
Symptoms started at birth
Diagnosed at 1 month
“We hope for a cure.”