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Happy Rare Disease Day everyone! Today raises awareness, tolerance and understanding. It’s amazing how many people are affected by the array of rare diseases out there. Collectively, we’re not so rare after all.

How will you celebrate Rare Disease Day?!

There are programs and events planned all over the world. These are just a few:

Sometimes it’s important to step back and take stock. I would like to thank all the researchers (and their families whom they probably neglected), industry, doctors, nurses, patients & their families, and all the good people that I’ve met in the eight years since I was diagnosed. Like it or not, we’re all in this mess together!

Brad Crittenden
President, Canadian Association of Pompe

Tagged: CAP, Rare Disease Day