Join us as we launch the Pompe Empowerment Program 2022 with five 2-hr sessions in January. This online series brings together Pompe disease families and other experts. These sessions start on Sunday, January 16th at 7pm ET and then continue on the Monday/Wednesday of the following two weeks:

  • Sun, Jan 16
  • Mon, Jan 17 & Wed, Jan 19
  • Mon, Jan 24 & Wed, Jan 26


The agenda is available on the Zoom event site, and these PDFs; (english, french)


This event is being held on Zoom’s new events platform. When you register to receive a ticket, you will need to have a Zoom account. If you don’t already have one, you can get a fee Zoom account when you register. This event is also free, so there is no charge at all.

  • The ticket is tied to your Zoom account so be careful when attending that you are signed into the right account. If you share your computer with someone else, they might be signed in, so watch for that.
  • Also note that you cannot share your ticket. Everyone need their own ticket!


We have some wonderful expert and patient speakers!


Thank you to our sponsors. Platinum: Sanofi Genzyme. Gold: Amicus Therapeutics, Asklepios BioPharmaceutical, Astellas Gene Therapies, AVROBIO, Spark Therapeutics

Tagged: Awareness, CAP, ERT, meetings, newborn screening