The IPA is excited to announce that the international Pompe community has chosen April 15, 2014 as the first annual International Pompe Day!
The goal of International Pompe Day is to foster international awareness of Pompe Disease and the slogan for our day is “Together We Are Strong.” The IPA encourages everyone to become involved in our inaugural International Pompe Day to show how STRONG our Community is–both in numbers and in passion!
There are several ways that you can participate!
#1–Upload a photo to the International Pompe Day website: http://www.worldpompe.org/events/international-pompe-day. The photo can be of you, your family and friends, or community showing what “Together We Are Strong” means to you!
#2–Participate in the International Pompe Day Art Contest!
There will be four categories for the contest: Ages 0-5; 6-10; 11-18; 18+
Participants can submit an essay, photo, drawing/artwork, etc that depicts what “Together We Are Strong” means to them.
The deadline for submissions is April 1, 2014 and winners will be announced on April 15, 2014.
Official Rules and release forms will be available on the International Pompe Day website: http://www.worldpompe.org/events/international-pompe-day.
For the latest information, check out the International Pompe Day Page on Facebook (search “International Pompe Day”) or our website at: http://www.worldpompe.org/events/international-pompe-day.