Chase

Chase

God saw you getting tired, and a cure was not to be. So he wrapped his arms around you, and whispered “come to me”

Shauna

Shauna

“Everyone we meet has something that they are dealing with in this world. Pompe disease is mine and I will make the most of it and hopefully the clinical trial I am on will make it better for those who come after me!”

Alexandra

Alexandra

“If you look for a silver lining, you’ll find something sweet—for me it was meeting all of the wonderful people I have connected with through the process of navigating life with Pompe.”