Julie

Julie

“I am not just Pompe, but it is as much a part of me as my blue eyes, big feet and dark sense of humour are. I’m in a happier place for getting my diagnosis and finding my tribe at last.”

Ian

Ian

“We all have our challenges in life and we will all have bad days but it’s how we face those challenges that make us who we are. As I like to say, any day above ground is a good day indeed.”