The IPA is excited to announce that the international Pompe community has chosen April 15, 2014 as the first annual International Pompe Day!
Hosted by the National Gaucher Foundation of Canada & facilitated by Emma Rooney, developer of www.mynormal.ca. You’ll leave this workshop with practical ideas and next steps for how to get started on your own story project.
The 2013 Canadian Association of Pompe National Meeting will be held in Toronto, June 8-9.
The Dutch Rare Disease Day was celebrated in Amsterdam. A big surprise was planned for all participants. The Dutch Genzyme team, in close collaboration with the organizing committee, had organized an unannounced spectacular end to the meeting!