Rare Disease Day 2017 from CAP

Rare Disease Day 2017 from CAP

February 28, 2017 marks the tenth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities based on the theme of research.

Rare Disease Day 2014

Rare Disease Day 2014

28 February, 2014 marks the seventh international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from more than 70 countries and regions worldwide are planning awareness-raising activities around the slogan “Join Together for Better Care”.

International Pompe Day 2014

International Pompe Day 2014

The IPA is excited to announce that the international Pompe community has chosen April 15, 2014 as the first annual International Pompe Day!

Flashmob Rare Disease Day, Amsterdam

The Dutch Rare Disease Day was celebrated in Amsterdam. A big surprise was planned for all participants. The Dutch Genzyme team, in close collaboration with the organizing committee, had organized an unannounced spectacular end to the meeting!