The 2017 CAP Conference and AGM will be held in Toronto, Ontario, June 10-11.
February 28, 2017 marks the tenth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities based on the theme of research.
March 9th and 10th, 2016 members of the Canadian Organization for Rare Disorders decended on Ottawa for their annual meeting and Awards Gala.
Look out Toronto! The 2016 CAP Conference and AGM will be held in Toronto, Ontario, May 28-29.
We’re very excited to announce that the 2014 meeting of the Canadian Association of Pompe will be held in Fredericton, New Brunswick, June 20-23.
28 February, 2014 marks the seventh international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from more than 70 countries and regions worldwide are planning awareness-raising activities around the slogan “Join Together for Better Care”.
The IPA is excited to announce that the international Pompe community has chosen April 15, 2014 as the first annual International Pompe Day!
Hosted by the National Gaucher Foundation of Canada & facilitated by Emma Rooney, developer of www.mynormal.ca. You’ll leave this workshop with practical ideas and next steps for how to get started on your own story project.
The 2013 Canadian Association of Pompe National Meeting will be held in Toronto, June 8-9.
The Dutch Rare Disease Day was celebrated in Amsterdam. A big surprise was planned for all participants. The Dutch Genzyme team, in close collaboration with the organizing committee, had organized an unannounced spectacular end to the meeting!