2025 Pompe Empowerment Workshop : Vancouver
This Pompe Empowerment Workshop welcomes patients and their family from BC to MB, for networking, learning and sharing.
2024 Pompe Empowerment Workshop : Toronto
This Pompe Empowerment Workshop welcomes patients and their family from Ontario or the Maritimes, for networking, learning and sharing.
2023 Atelier d’Autonomisation – Maladie de Pompe : Montréal
Cet événement est présenté en français. (This event is presented in French.) L’atelier d’autonomisation de la maladie de Pompe : Montréal sera présent à l’hôtel Renaissance à Montréal le samedi 21 octobre 2023. Les séances comprennent : maladie de...
Rare Disease Day 2022
We still live in a world where there are over 300 million people living with over 6,000 rare diseases. That’s enough to populate the 3rd largest country in the world. We have the tools to diagnose them quicker, but we aren’t doing it.
Pompe Empowerment Program (PEP) 2022
Starting Jan 16, 2022, this online series brings together Pompe disease families and other experts in five 2-hr sessions over 11 days.
2020 CAP Annual General Meeting
This year’s annual general meeting will be held on June 14, 2020, at 4pm EST.
Rare Disease Day 2019
February 28, 2019 will be the twelfth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities.
2017 CAP Conference and AGM
The 2017 CAP Conference and AGM will be held in Toronto, Ontario, June 10-11.
Rare Disease Day 2017 from CAP
February 28, 2017 marks the tenth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities based on the theme of research.
CORD Paints Parliament Yellow
March 9th and 10th, 2016 members of the Canadian Organization for Rare Disorders decended on Ottawa for their annual meeting and Awards Gala.