Rare Disease Day 2017 from CAP

Rare Disease Day 2017 from CAP

February 28, 2017 marks the tenth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities based on the theme of research.

The Kaitlyn Hatchard Award for Team Spirit

The Kaitlyn Hatchard Award for Team Spirit

We were very honoured to accept the Kaitlyn Hatchard Award for Team Spirit for the Atlantic Region, given to both Annette and CAP, at our 2015 Conference in Montreal. The award was presented to Annette by Pascale Rousseau, Directrice des services – Division du Qu├ębec. This is a very special award, please read the letter below.

CAP on Orphanet

We’re pleased to announce that the Canadian Association of Pompe is now listed on Orphanet. Orphanet is the reference portal for information on rare diseases and orphan drugs, for all audiences.

Rare Disease Day 2013 from CAP

Rare Disease Day 2013 from CAP

Happy Rare Disease Day everyone! That does seem like an odd thing to say, but we celebrate the things that define our lives and for those of us that have a rare disease, it certainly plays a significant part in it.