Rare Disease Day 2022

Rare Disease Day 2022

We still live in a world where there are over 300 million people living with over 6,000 rare diseases. That’s enough to populate the 3rd largest country in the world. We have the tools to diagnose them quicker, but we aren’t doing it.

Rare Disease Heroes

Complex and infinitely challenging, finding diagnoses for rare diseases takes real heroes that lead the charge in this battle.

Rare Disease Day 2016

Rare Disease Day 2016

Rare Disease Day was first launched by EURORDIS and its Council of National Alliances in 2008. Since then it has spread with events all around the world that reach hundreds of thousands of people. Rare Disease Day always takes place on the last day of February.