Recent Posts

#Pies4Pompe Challenge

The #Pies4Pompe Challenge is an awareness campaign hosted by Canadian Association of Pompe and driven by community and public participation.

2023 Atelier d’Autonomisation – Maladie de Pompe : Montréal

Cet événement est présenté en français. (This event is presented in French.) L'atelier d'autonomisation de la maladie de Pompe : Montréal sera présent à l'hôtel Renaissance à Montréal le samedi 21 octobre 2023. Les séances comprennent : maladie de Pompe, le Plan...

What is Pompe disease?

Pompe disease is one of about 50 Lysosomal Storage Disorders. Pompe patients are deficient in the critical enzyme acid alpha-glucosidase.


About CAP

We are committed to helping Pompe patients and their families in Canada through education, support and community.



Ways to connect with other patients & families and social media opportunities to stay informed.


New Patients and Families

Welcome to the wonderful world of rare disease. It’s a much different world than it was a few years ago. There’s so much information out there, and there are places to turn for support and friendship. With social media, especially Facebook and Twitter, there are answers.

There are patient advocacy groups all over the world, of which CAP is one of them.

Connect with us


Mailing Address

112-3201 Wilson St
Penticton, BC,
V2A 8J3