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International Pompe Day 2022

Pompe Day is wrapping up soon for another year. It’s important to point out that for Pompe families, Pompe Day is 365 days long.

Rare Disease Day 2022

We still live in a world where there are over 300 million people living with over 6,000 rare diseases. That’s enough to populate the 3rd largest country in the world. We have the tools to diagnose them quicker, but we aren’t doing it.

What is Pompe disease?

Pompe disease is one of about 50 Lysosomal Storage Disorders. Pompe patients are deficient in the critical enzyme acid alpha-glucosidase.

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About CAP

We are committed to helping Pompe patients and their families in Canada through education, support and community.

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Connections

Ways to connect with other patients & families and social media opportunities to stay informed.

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New Patients and Families

Welcome to the wonderful world of rare disease. It’s a much different world than it was a few years ago. There’s so much information out there, and there are places to turn for support and friendship. With social media, especially Facebook and Twitter, there are answers.

There are patient advocacy groups all over the world, of which CAP is one of them.

New Brunswick, 2014

Out of a stormy cloud comes a whole bunch o’ crazy people waving their hands… at the 2014 Fredericton Walk for Muscular Dystrophy. We were fortunate to gather in New Brunswick for our 2014 CAP Conference and were humbled to be presented with the Kaitlyn Hatchard Award with Annette Sebey.

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Mailing Address

112-3201 Wilson St
Penticton, BC,
Canada
V2A 8J3

Follow us on Twitter

As #PompeDay comes closer to a close, we'd like to recognize that this isn't a single day for #Pompe families. It's a day that lasts 365 days. Keep building a strong community, respect and boost each other, and stay informed. https://t.co/hs10g7SYQQ
#RareDisease #PompeDisease
International #PompeDay is April 15.

Unsure if you have a neuromuscular disorder? Wanna talk to your doctor but don’t know how? Try https://t.co/WFeQbd3W1E for guidance, from symptoms to genetic testing.
https://t.co/eeIIrtzWm5
#RareDisease #PompeDisease #Pompe https://t.co/OBqZE0hjyd