Recent Posts

What is Pompe disease?

Pompe disease is one of about 50 Lysosomal Storage Disorders. Pompe patients are deficient in the critical enzyme acid alpha-glucosidase.

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About CAP

We are committed to helping Pompe patients and their families in Canada through education, support and community.

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Connections

Ways to connect with other patients & families and social media opportunities to stay informed.

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New Patients and Families

Welcome to the wonderful world of rare disease. It’s a much different world than it was a few years ago. There’s so much information out there, and there are places to turn for support and friendship. With social media, especially Facebook and Twitter, there are answers.

There are patient advocacy groups all over the world, of which CAP is one of them.

New Brunswick, 2014

Out of a stormy cloud comes a whole bunch o’ crazy people waving their hands… at the 2014 Fredericton Walk for Muscular Dystrophy. We were fortunate to gather in New Brunswick for our 2014 CAP Conference and were humbled to be presented with the Kaitlyn Hatchard Award with Annette Sebey.

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Mailing Address

112-3201 Wilson St
Penticton, BC,
Canada
V2A 8J3

Follow us on Twitter

1 day ago
Happy to host this webinar with @MD_Canada, hearing from #Pompe families living through the pandemic and Dr Aneal Khan, Medical Geneticist and Paediatrician, MAGIC Clinic and University of Calgary #RareDisease #PompeDisease https://t.co/7dS2D6I1Pq
Muscular Dystrophy Canada @MD_Canada
MDC and @pompecanada are pleased to host a webinar titled: 'Emerging from the Pandemic: Pompe Perspectives.’ Join us on June 23rd at 7:30pm ET ft. Dr Aneal Khan, Paediatrician and Medical Geneticist, MAGIC Clinic and University of Calgary.
Register: https://t.co/Mf6YTkjgkB https://t.co/Pqey3h7LMQ
1 week ago
Are you or a loved one living with a rare metabolic disease? There is a new clinical trial for managing rare metabolic diseases! In the first ever global app-based study individuals will use the @Zamplo_app app to track, manage, and analyze their health. https://t.co/VWZeL9QWT2 https://t.co/Zpcg5t5F7I