Recent Posts

What is Pompe disease?

Pompe disease is one of about 50 Lysosomal Storage Disorders. Pompe patients are deficient in the critical enzyme acid alpha-glucosidase.

More…

About CAP

We are committed to helping Pompe patients and their families in Canada through education, support and community.

More…

Connections

Ways to connect with other patients & families and social media opportunities to stay informed.

More…

New Patients and Families

Welcome to the wonderful world of rare disease. It’s a much different world than it was a few years ago. There’s so much information out there, and there are places to turn for support and friendship. With social media, especially Facebook and Twitter, there are answers.

There are patient advocacy groups all over the world, of which CAP is one of them.

New Brunswick, 2014

Out of a stormy cloud comes a whole bunch o’ crazy people waving their hands… at the 2014 Fredericton Walk for Muscular Dystrophy. We were fortunate to gather in New Brunswick for our 2014 CAP Conference and were humbled to be presented with the Kaitlyn Hatchard Award with Annette Sebey.

Connect with us

Facebook
Twitter
Instagram
YouTube
LinkedIn

Mailing Address

112-3201 Wilson St
Penticton, BC,
Canada
V2A 8J3

Follow us on Twitter

5 days ago
New name, new logo, new first patient dosed in the FORTIS #GeneTherapy study for late-onset #PompeDisease. It's a good day! #RareDisease #Pompe https://t.co/iPko8QFe71
1 month ago
Congrats MDC. Be proud! https://t.co/XrZWwIZLAe
Muscular Dystrophy Canada @MD_Canada
MDC has been awarded accreditation in Imagine Canada’s Standards Program for excellence in non-profit accountability, transparency, governance and fundraising. Learn more about this prestigious accreditation here: https://t.co/W5I9JTmVir https://t.co/Rv8OZHIhAE