Recent Posts

New ERT For Late-onset Pompe Disease Shows Promise

Results from the COMET study were recently reported showing neoGAA (avalglucosidase alfa), the newer enzyme replacement therapy (ERT) currently in development, to be as effective as the currently approved ERT, Myozyme (alglucosidase alfa), in persons with late-onset Pompe disease.

Portraits of Pompe

This year, for International Pompe Day, we’re launching Portraits of Pompe, an ongoing curation of stories and photos from Pompe patients and families.

What is Pompe disease?

Pompe disease is one of about 50 Lysosomal Storage Disorders. Pompe patients are deficient in the critical enzyme acid alpha-glucosidase.


About CAP

We are committed to helping Pompe patients and their families in Canada through education, support and community.



Ways to connect with other patients & families and social media opportunities to stay informed.


New Patients and Families

Welcome to the wonderful world of rare disease. It’s a much different world than it was a few years ago. There’s so much information out there, and there are places to turn for support and friendship. With social media, especially Facebook and Twitter, there are answers.

There are patient advocacy groups all over the world, of which CAP is one of them.

New Brunswick, 2014

Out of a stormy cloud comes a whole bunch o’ crazy people waving their hands… at the 2014 Fredericton Walk for Muscular Dystrophy. We were fortunate to gather in New Brunswick for our 2014 CAP Conference and were humbled to be presented with the Kaitlyn Hatchard Award with Annette Sebey.

Connect with us


Mailing Address

112-3201 Wilson St
Penticton, BC,
V2A 8J3

Follow us on Twitter

1 week ago
New Review Article Highlights Latest Developments in #Pompe Disease Research via @pompecanada #RareDisease #PompeDisease
2 weeks ago
Congratulations on an awesome Walk for Muscular Dystrophy!