Personal Stories
05
Jan
2010
Time for my Miracle
Ontario
Written by Guy Ashford-Smith   

What do Harrison Ford, Brendan Fraser and I have in common? Well, these two actors are starring in a new movie called Extraordinary Measures, to be released later this month. The movie is based on Pulitzer Prize-winning author Geeta Annand's book, The Cure.

It's the true story of John Crowley, who, upon discovering his two very young children were diagnosed with Pompes disease (a rare form of muscular dystrophy), sets out to find a treatment for them. The tag line for the movie is, "Don't wait for a miracle. Make one!"

Crowley, a Harvard MBA, formed a company, financed research and ultimately found a treatment for this disease. He truly made a miracle.

This is where I come in. I also have Pompes. I'll be having my first dose of John Crowley's miracle tomorrow...

 


 

Design by PacificByte