Events
21
Jun
2011
2011 AMDA/IPA Patient And Scientific Conference
Written by Administrator   

On October 7-9, 2011 the AMDA and IPA will be hosting the 2011 AMDA/IPA Pompe Patient and Scientific Conference in San Antonio, Texas at the Holiday Inn Riverwalk. Click either link below for more information.

AMDA - Acid Maltase Deficiency Association

International Pompe Association

 
27
Feb
2011
Rare Disease Day 2011
Written by EURORDIS   

Rare Disease Day is an annual, awareness-raising event co-ordinated by EURORDIS at the international level and National Alliances of Patient Organisations at the national level

February 28th 2011 will mark the fourth International Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 countries. On that day hundreds of patient organisations from more than 40 countries worldwide will be organising awareness-raising activities and converging around the slogan “Rare but Equal”.

Rare Disease Day 2001

 


 

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