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  • Rare Disease Day

    Rare Disease Day is an annual, awareness-raising event coordinated by EURORDIS at the international level and National Alliances of Patient Organisations at the national level. Rare Disease Day is observed on the last day of February....
  • Brad's fight against Pompe Disease - a silent killer

    This is my second letter to you and the reason is that I want to clearly identify the life and death situation my son faces so that I know that you know the seriousness of this....
  • Evening News Expensive treatment

    An Okanagan man is fighting for medical coverage for a disease so rare he says only one other person in B.C. has it. www.chbcnews.ca...
  • National CBC News

    Here is the link:http://www.cbc.ca/thenational/watch/The first Acknowledgement is 12min. in the main link is 14min. into prodcast...
  • Genzyme chief expects to increase Mass. workforce by at least 500

    Genzyme chief expects to increase Mass. workforce by at least 500 Genzyme Corp., which is working to end rationing of two key drugs and return to full-scale production by midyear at its troubled Allston Landing plant, expects to hire more than 500 worker...
  • Mac research chair aids push for neuromuscular breakthroughs

    A Hamilton doctor looking for the fountain of youth will spend more time in his lab after getting $2 million in research funding. Dr. Mark Tarnopolsky's work on how muscles function also holds hope of finding new treatments for neuromuscular and neurom...
 

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