08
May
2011
The Journey of Sam
eLearning
Written by Administrator   

Now posted! click here...

An eLearning module to learn about Pompe Disease, by going through the journey of Sam, recently diagnosed with Pompe Disease.

University of South Hampton

 
15
May
2011
Flashmob Rare Disease Day, Amsterdam
Video
Written by Administrator   
 
21
Jun
2011
2011 AMDA/IPA Patient And Scientific Conference
Events
Written by Administrator   

On October 7-9, 2011 the AMDA and IPA will be hosting the 2011 AMDA/IPA Pompe Patient and Scientific Conference in San Antonio, Texas at the Holiday Inn Riverwalk. Click either link below for more information.

AMDA - Acid Maltase Deficiency Association

International Pompe Association

 
08
May
2011
Respiratory muscle strength training in Pompe disease
Webinars
Written by Administrator   

Now posted! click here...

Guest Speaker: Harrison N. Jones, PhD, BRS-S, CCC-SLP, Assistant Professor, Department of Surgery, Division of Speech Pathology & Audiology, Duke University. Dr. Jones received his PhD from the University of Florida in Rehabilitation Science in 2007.

AMDA - Acid Maltase Deficiency Association

 
 

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