01
Oct
2014
First Pompe Patient Treated in New Brunswick
Getting Treated
Written by CAP   

After many years (yes years) of fighting to have the treatment reimbursed, Annette Sebey had her first infusion in her home province today.

July 28, 2014 New Brunswick announced the New Brunswick Drugs for Rare Diseases Plan. This plan provides reimbursement for treatment of five rare diseases, including Pompe.

 
28
Jul
2014
New Brunswick Announces Plan to Treat Patients
Getting Treated
Written by CAP   

The provincial government has established the New Brunswick Drugs for Rare Diseases Plan which will provide assistance to those with certain rare diseases who face high drug costs.

New Brunswick will partner with Ontario to deliver the plan using its Drugs for Rare Diseases Framework. The framework was established to assess drugs using the best available evidence and recommend drugs for funding based on clinical criteria.

 
16
Sep
2014
CAP Supports Newborn Screening for Pompe Disease
CAP News
Written by Brad Crittenden   

Canadian Association of Pompe would like to express its support to include Pompe disease in Provincial/territorial Newborn Screening panels.

 
23
Mar
2014
Balance - March 2014
Publications
Written by CAP   

The March 2014 issue of Balance is out.

Balance is published three times a year by the BC Association for Individualized Technology and Supports for People with Disabilities (BCITS).

 
 

Design by PacificByte